Welcome...
Hi my name is Rafe Walker and I am 10 years old and I live in Worcestershire, UK. I have been diagnosed with a Tectal Plate brain tumour or WART as I like to call it.
This Wart is deep down in my brain and the doctors cannot operate on it because it would be too dangerous and it might damage my brain!
I am now under close observation to see what WARTY is going to do next - it might grow or may just stay the same - we just don't know!!
Warty has caused me problems and was blocking one of the tubes in my brain so that the brain fluid couldn't flow properly. This was giving me headaches and sickness and caused my optic nerves to swell.
I have had an operation called a third venticulostomy-(this is where they burn a new hole in the brain for the fluids to flow. It's like getting a new drain.) to correct this now and have a wicked scar to prove it - it is in the shape of an 'S' - my fantastic surgeon's name begins with 'S' so I think he has left his mark - thanks Mr SOLANKI !! Wart' had better watch out when Mr Solanki's about!
(I am being treated at Birmingham Children's Hospital).
I have an older brother Cameron, a mum and dad and twin sister Clementine.
I am normally a really active dude and go to Stagecoach Theatre school on Saturdays to Act, Sing and Dance. I also love going to the Climbing wall at Worcester. I used to play football (defender) for Hunt End Rangers. I support WBA (come on you Baggies !)
I think Dr WHO is wicked!
I also play the guitar and keyboard and am learning the saxaphone too!
I love most most music inc McFLY, HOOSIERS,GREEN DAY, SCOUTING FOR GIRLS & I listen to BBC Radio Hereford & Worcester and Radio 2 !
This is my diary which I update regularly- so please keep up to date......
This Wart is deep down in my brain and the doctors cannot operate on it because it would be too dangerous and it might damage my brain!
I am now under close observation to see what WARTY is going to do next - it might grow or may just stay the same - we just don't know!!
Warty has caused me problems and was blocking one of the tubes in my brain so that the brain fluid couldn't flow properly. This was giving me headaches and sickness and caused my optic nerves to swell.
I have had an operation called a third venticulostomy-(this is where they burn a new hole in the brain for the fluids to flow. It's like getting a new drain.) to correct this now and have a wicked scar to prove it - it is in the shape of an 'S' - my fantastic surgeon's name begins with 'S' so I think he has left his mark - thanks Mr SOLANKI !! Wart' had better watch out when Mr Solanki's about!
(I am being treated at Birmingham Children's Hospital).
I have an older brother Cameron, a mum and dad and twin sister Clementine.
I am normally a really active dude and go to Stagecoach Theatre school on Saturdays to Act, Sing and Dance. I also love going to the Climbing wall at Worcester. I used to play football (defender) for Hunt End Rangers. I support WBA (come on you Baggies !)
I think Dr WHO is wicked!
I also play the guitar and keyboard and am learning the saxaphone too!
I love most most music inc McFLY, HOOSIERS,GREEN DAY, SCOUTING FOR GIRLS & I listen to BBC Radio Hereford & Worcester and Radio 2 !
This is my diary which I update regularly- so please keep up to date......
It's me!
Clemmie
More pics...
